Network – 9-year-old Ashley who has
static encephalopathy, a severe brain impairment, has
received treatment at
Ashley cannot walk or talk. She cannot keep her head up, roll over or sit up by herself. She is fed with a tube. Her parents call her “Pillow Angel” because she stays right where they place her, usually on a pillow. The parents have defended their act as a humane one, expressing their fear that their angel would become too big one day— too big to lift, too big to move, too big to take along on a family outing; that they are keeping her small in order to allow her to receive more care, more interaction with her younger brother and sister, and more of the loving touch of parents and others who can carry her.
unusual case has sparked an ethical debate, mainly in the